God is our merciful Father and the source of all comfort. He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us.
(2 Corinthians 1:3b-4, NLT)

Monday, May 24, 2010

Our old TPN/Omegaven/tube feed backpack setup


Allison said...

Can you help me find the source of the statistics you used about survival rates of TPN dependent kids? My daughter is 5 and has been 100% TPN dependent for 2 years now.. Her bill is currently sitting at 3.8, but we cannot access omegaven for her - she has confirmed TPN induced cholestasis, and severe clotting abnormalities related to both the liver issues and petal hypertension damaging her spleen.

Raeanne said...

The statistics are from a talk Dr. Puder gave about Omegaven. Is her direct bili at 3.8, or her total bili? Where have you tried to get her Omegaven? Have you spoken to Dr. Puder in Boston? I can help put you in touch with him if you'd like.

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