Awesome news!

Wednesday, June 2
We're not using Faith's g-tube anymore! We stopped about a week ago, with the exception of one night, before we headed to a Rockies game and didn't want her to get dehydrated from being outside all day. But she is doing awesome, drinking at least 20 oz every day, and eating like a pro!
She amazes people with how fast she can wolf down a banana, and she LOVES meat! She can polish off half a cornish hen, or an entire chicken breast, all by herself! She regularly eats at least as much (if not more) than her big brother at meals. Not such a big fan of veggies though... we might have to try giving her some green smoothies and seeing if she'll drink them...
So, not using her tube means she's no longer getting *any* formula. And while the strong anti-formula side of me wants to do a happy dance, she's also almost exclusively drinking water... she's lactose intolerant, so we have to give her Lactaid milk, but she really doesn't seem to be a big fan of it... So the worrier side of me wonders what the nutritional implications are for a toddler who doesn't drink anything but water, and won't eat her veggies... I think we will try a flavored formula when we are in Boston next week, to see if she will drink it, and if she will, we might switch her from her baby g-tube formula to big girl flavored, drinkable formula! (not that her Neocate isn't drinkable, but if you smelled it, you'd understand why she won't drink it!)
I'm looking forward to our week in Boston, to seeing our Boston friends again, and to walking in the NStar Walk for CHB! Please consider donating to our team, the work they do at Children's Hospital Boston, and the support they give to families there is absolutely amazing!